First-time blood donor leads efforts to increase donations to aid those with sickle cell disease

By Eilene E. Guy, American Red Cross volunteer

When Dr. LaTrice Snodgrass puts her mind to a project, she goes all in.

Recently, she partnered with the American Red Cross and others to stage a blood drive targeted at the Black community, to benefit people living with sickle cell disease (SCD).

Dr. LaTrice Snodgrass and Kim Kroh, executive director of the Heartland, Stark and Muskingam Lakes chapter of the Red Cross

Not only did she spearhead the event, she literally rolled up her sleeve to donate blood – for the first time.

Through this donation, LaTrice learned that her blood is negative for three components, which makes her an ideal SCD donor. Blood transfusions from donors like LaTrice are vital to let SCD patients live comfortable, healthy lives.

LaTrice knows the importance of blood donations from her own racial community. More than 100,000 Americans — mostly African Americans — have sickle cell disease, which causes acute pain and over time damages vital organs. Her sorority, Delta Sigma Theta, put out a national call to boost donations from African Americans. “I told my sisters, we need to do this,” she said.

“I know there is a resistance in the Black community to trusting the medical establishment, but we have to overcome that. Our blood is truly lifesaving.” she said, explaining her decision to give blood for the first time, despite not being enthusiastic about needles.

SCD is an inherited condition that distorts soft, round red blood cells, turning them hard and crescent shaped. As a result, blood can’t flow smoothly to carry oxygen throughout the body, causing fatigue, severe pain, tissue and organ damage and even strokes.

Kim Kroh, executive director of the Heartland, Stark and Muskingam Lakes chapter of the Red Cross, was delighted to support LaTrice’s initiative. The project soon recruited the Strong Family Wellness Weekend, sponsored by Sean and Shaheedrah Strong, as well as the Black Nurses Association, Akron Children’s Hospital and Beacon Charitable Pharmacy, where LaTrice serves as CEO.

The drive at the Canton Civic Center exceeded its collection goal and, importantly, involved a lot of first-time donors.

“When the time comes for me to donate again, I plan to. And I’m going to reach out to my sorority sisters and friends to remind them that they need to donate again too,” she said.

Kim Kroh from the Red Cross, who has been giving blood for years, was on hand to support LaTrice through her first “poke.”

“I have a passion for (the cause of) sickle cell,” Kim said. “I know a teenager with sickle cell. What they go through is just terrible.”

The Red Cross supplies some 40 percent of the nation’s blood supply and launched a specific Sickle Cell Initiative three years ago to boost blood collection for this set of recipients.

Although Kim’s blood isn’t uniquely beneficial for SCD patients, it’s also vital: Every two seconds, someone in the U.S. needs blood, to deal with complications of childbirth, treatment for cancer, surgery or emergency room trauma.

To learn more about SCD or to make an appointment to donate blood, visit RedCrossBlood.org, use the free Blood Donor App or call 1-800-REDCROSS.

Edited by Glenda Bogar, Red Cross volunteer

Posted by Ryan Lang, Red Cross board member and volunteer

Blood drives held for Sickle Cell Awareness Month

Three separate blood drives were scheduled in Akron, Ohio for the final three days of September to collect lifesaving blood and to raise awareness of sickle cell disease.

About 100,000 people in the United States have sickle cell disease. The disease affects 1 out of every 365 Black or African American births.

Michael Irby, President of the 100 Black Men of Akron, Rachel D’Attoma, Executive Director
Greater Akron and The Mahoning Valley, Ryan Lang, Red Cross board member and volunteer, Amy Cole, Red Cross board member and volunteer

People with sickle cell disease may need as many as 100 units of blood each year. Blood donations could help alleviate the symptoms of someone living with sickle cell disease, or even help save their life.

On Thursday, September 28th , the organization 100 Black Men of Akron hosted a drive at the headquarters of the Red Cross of Greater Akron and the Mahoning Valley. Michael Irby, President of the local organization, said hosting the blood drive fits with the national group’s mission.

Michael Irby, President of 100 Black Men of Akron with Charles Brown, Red Cross board member and Deputy Mayor of Akron, (retd.)

“Being out in the community, not just mentoring but partnering is important to us,” he said. “Blood drives fit right into our narrative of health and well-being.”

Michael said hosting the blood drive was especially important, not just because September is Sickle Cell Awareness Month, but also because of the shortage of blood nationwide.

The American Red Cross declared a national blood shortage on Sept. 11, citing a critically low blood supply level that dropped nearly 25% since early August.

When supplies are low it can often take weeks for inventories to rebound. The Red Cross estimates that 10,000 additional blood products must be collected each week over the next month for the blood supply to reach sufficient levels and meet hospital and patient needs.

On Friday, September 29th , the Akron Public Schools and Delta Sigma Theta Akron Alumnae Chapter and the Active Chapter at the University of Akron scheduled a blood drive at the Akron Public schools board office. And on Saturday, September 30th, a blood drive sponsored by the Akron National Panhellenic Council was scheduled at the Greater Akron and the Mahoning Valley Chapter headquarters. It’s the second blood drive for sickle cell awareness hosted by the group, following an initial blood drive last June.

If you feel healthy and well, please consider scheduling a blood donation by visiting redcrossblood.org, or by calling 1-800-RED CROSS (1-800-733-2767.) You can also schedule an appointment on the Red Cross blood donor app.

Donors of all blood types are urgently needed, and there is an emergency need for platelet donors and type O blood donors to make an appointment to give now to ensure patients across the country continue receiving critical medical care. And for people with sickle cell disease, blood from people of the same race or similar ethnicity is important in ensuring the best transfusion results, with the least potential reaction.

Posted by Ryan Lang, Red Cross board member and volunteer

Shedding light on Sickle Cell Disease

By Eilene E. Guy, American Red Cross volunteer

Sickle Cell Disease is hiding in plain sight, and La’Shardae Scott is determined to bring it into the spotlight.

Sickle Cell Disease (SCD) is the most common genetic blood disorder in the United States, afflicting some 100,000 people, primarily those of African descent. Every year, an estimated 1,000 babies are born with SCD.

During September, Sickle Cell Awareness Month, the American Red Cross is teaming up with SCD crusaders like La’Shardae to bring attention to this painful and life-threatening disorder.

The Scott Family: Eric, La’Shardae, Emory, Evan, Eric and Liam

La’Shardae has launched the nonprofit Scott Center for Observation, Treatment and Transition in Oregon, Ohio, to minimize infant mortality in populations of color and help families and individuals with SCD transition successfully from pediatric to adult care.

She’s well aware that people of color have a fraught history with the medical establishment, which leads to poor doctor-patient relationships. Even today, misconceptions persist about Black people’s tolerance for pain.

“Patients born with this condition don’t look ill; they learn to manage their pain, but that doesn’t mean it isn’t real,” she said. “So when they finally seek help, they get dismissed as drug-seeking and that leads to further complications.”

Screening of newborns for SCD is now routine in all 50 states, but too often parents — confronted with the sudden notice that their baby has an incurable condition — don’t know how to handle that reality as the child grows, La’Shardae said.

At her house, she relies on medications, appropriate diet and “hydration, hydration, hydration” to keep her two SCD “warriors,” eight-year-old Emory and Evan, 7, thriving. At the same time, she advocates for them when they experience the acute pain and other side effects typical of SCD. But she knows the damaging effects accumulate.

SCD causes red blood cells to take the shape of crescent moons or sickles. These misshapen cells don’t carry their full load of oxygen throughout the body, leading to anemia, pain “crises” and gradual damage to organs and tissues. Worse yet, the sickled cells tend to clump together, causing strokes.

Transfusions play a key role in “diluting” these defective cells in the blood stream, easing pain and slowing damage. Blood from one in three African American donors carries unique characteristics — antigens — that make it a close match for SCD patients.

This is where the Red Cross comes in. As supplier of more than 40% of the nation’s whole blood and blood products, the Red Cross needs a diverse donor population to meet the many unique transfusion needs.

Since launching its Sickle Cell Initiative in 2021, the Red Cross has seen a 60% increase in first- time African American blood donors to more than 45,000.

La’Shardae is working hard to boost that number. She uses social media platforms, Facebook Live and community presentations to educate and recruit. You can read all about her activities at scottcenteroh.org.

Her next event is the Scott Community Blood Drive in partnership with the Red Cross, from 9 a.m. to 2 p.m. Sept. 16 at 653 Miami St. in Toledo.

To register to give blood, go to redcrossblood.org, call 1-800-REDCROSS or use the free Red Cross blood donor app.

Edited by Glenda Bogar, Red Cross volunteer

Posted by Ryan Lang, Red Cross board member and volunteer

World Sickle Cell Day

By Eilene E. Guy, American Red Cross Volunteer

What do Juneteenth (today) and World Sickle Cell Day (also today) have in common? Both of these events focus on African Americans.

Glinda Dames-Fincher is a member of the American Red Cross Sickle Cell Sub-committee in northern Ohio. She’s a proud, outspoken “sickle cell warrior” calling for more Black blood donors.

Glinda Dames-Fincher

“Over 80 percent of Americans with Sickle Cell Anemia are of African descent, and ethnicity matters with blood transfusion,” she said. Many individuals who are Black have unique structures on their red blood cells that make their donations the most compatible to help patients with sickle cell disease. Glinda likes to think of it as “special sauce.”

“So please, African Americans, roll up your sleeves and help sickle cell warriors like me fight their battle!”

For Glinda, the need is personal. In order to combat the many effects of sickle cell (SCD) on her body, she gets two units of red blood cells every month; the procedure involves withdrawing one unit of her damaged blood each time and then transfusing in two units of healthy red cells.

She figures she’s received more than 600 units of red cells, between regular transfusions and the many surgeries she’s undergone to repair organs damaged by oxygen deprivation.

Glinda is a wealth of knowledge about sickle cell:

 This inherited disorder makes red blood cells sticky, rigid and curl into a C “sickle” shape, limiting their ability to carry oxygen into every tissue in the body. The misshapen cells also tend to clump, leading to various complications. “For many pediatrics, a stroke is their first major sickle cell event,” she said.

 When tissues are starved of oxygen, something as simple as a change in the weather can trigger excruciating pain – called a sickle cell crisis – lasting from hours to days or even weeks. That often sends sickle cell sufferers to emergency rooms for treatment, including pain killers and blood transfusions.

 Sickled red blood cells also die prematurely: The distorted cells die within 10 to 20 days, compared to normal red blood cells that typically last 100 to 120 days. That leads to a shortage of red blood cells, a type of anemia. Here again, transfusions are crucial.

 Glinda is 64. “When I was born, life expectancy for a sickle cell patient was 18 years. Now it’s 40 to 60 years, thanks to medications and research,” she said. However, over time, patients may be subject to persistent infections, and damage to kidneys, heart, lungs and other organs.

 SCD affects more than 100,000 people in the United States. Eight out of 10 of them are of African descent; the rest are Hispanic or trace their ancestry to south Asia (such as India), southern Europe (Greece and Italy) or the Middle East (such as Saudi Arabia and Lebanon).

 SCD testing is part of the routine blood tests for newborns in the United States. Additionally, the Red Cross provides sickle cell trait testing for all blood donors who identify themselves as Black or African American. Those with the “trait” inherited a sickle cell gene from one parent; those who got a sickle cell gene from both parents are born with the disease.

Since the best blood match for a patient receiving ongoing transfusions comes from donors of the same genetic background, the Red Cross is urging people of all ethnicities to give blood and help increase the number of diverse donors, so we can find the best match for all patients.

Watch this video that documents Glinda’s ongoing struggle with sickle cell disease.

In honor of Juneteenth, learn more about SCD and please make an appointment to donate blood at RedCrossBlood.org/SickleCell.

Posted by Ryan Lang, American Red Cross board member and volunteer