By Ryan Lang, American Red Cross

Sickle cell disease affects more than 100,000 people in the United States. One out of every 365 Black or African American births is affected by sickle cell. People living with sickle cell disease may need as many as 100 units of blood each year. These are all statistics that Demeatrice Nance was unaware of prior to October 2003, when her daughter Makenzie was born. 

“There were some abnormalities in her newborn screening and the doctor wanted us to come in to talk about it,” Demeatrice said. “That was when they told us that Makenzie had sickle cell disease.”

Demeatrice and her husband were devastated, mostly, she said, because they didn’t know where to start getting the best help for their daughter.

From that point on, Demeatrice was on a fact-finding mission – a quest for knowledge about sickle cell disease. “We did a lot of online research and had a lot of conversations with the doctors. We were also referred to a local sickle cell outreach group that provided a lot of resources for Makenzie and our family,” Demeatrice said.

As Demeatrice delved more deeply into the world of sickle cell disease, she quickly discovered how important blood donors, especially Black blood donors, would be in Makenzie’s life.

Fast forward just two and a half years and Makenzie needed her first blood transfusion. “The doctor told us her hemoglobin had dropped, and it was at a crucial state, and Makenzie needed a blood transfusion,” Demeatrice explained. Then she and her husband got word from the doctor that there was a blood shortage, specifically from African American donors, which was what Makenzie and most all sickle cell patients need.

“The doctor said we’re just gonna try and wait it out and try and locate blood for her,” Demeatrice said. And while it was only about a day before they did locate blood for Makenzie, Demeatrice said it felt like a year. “From that time, donating blood has been a priority to me and educating people about the importance and the reason to donate blood. It’s important that our sickle cell warriors have the blood supply when it’s needed.”

For the past 15-plus years Demeatrice and her family have been advocating and educating. Advocating for her own sickle cell warrior, Makenzie, and all of the sickle cell warriors who desperately need blood. And educating the public about why they need blood and why the blood supply needs to be maintained through regular donations.

“My first blood drive was small,” Demeatrice said, “but when I shared my story and explained the importance of donating, not just for sickle cell patients, but for cancer patients and trauma victims and others, the numbers started growing.” Demeatrice says she always tells people, “It could by my day today, or it could be your day tomorrow,” which is why she encourages everyone she meets to donate blood.   

As for Makenzie, she’s just graduated with an associate’s degree in health science and is starting her nursing clinicals in the next couple of months. “Sickle cell patients are often told they can’t do a lot of things, but over the past 21 years Makenzie’s done more things than a lot of people ever thought she could do,” Demeatrice said, beaming with pride for her sickle cell warrior.

Click here to hear more of Demeatrice’s story about her journey with Makenzie and sickle cell disease.

To schedule your appointment to donate today, visit redcrossblood.org.