By Tim Poe, American Red Cross volunteer
September 25, 2020- September is Sickle Cell Awareness Month, and the need for blood donations to assist the 100,000 Americans with sickle cell disease is especially critical this year. While the disease does not have a cure, blood transfusions are one of the most effective treatments. The American Red Cross requests anyone who can help with a lifesaving blood donation to do so.
Sickle cell disease, which mostly affects those of African and Latino descent, causes red blood cells to be hard and crescent-shaped. Blood has difficulty flowing smoothly and carrying oxygen to the rest of the body, which may lead to severe pain, tissue and organ damage, acute anemia and even strokes.
As Christy Peters, External Communications Manager for Red Cross’ Northern Ohio Biomedical Services, reported in June, blood donations from African Americans are vital in treating sickle cell disease, as blood must be closely matched to reduce the risk of complications. During the COVID-19 pandemic, however, she noted, “the number of African Americans donating blood with the Red Cross has dropped by more than half.”
Julie Broze at MetroHealth Medical Center’s Hematology/Oncology Department also mentioned the importance of blood donors in treating sickle cell disease. While MetroHealth has not had its blood supply for sickle cell patients hindered, she said more people donating is vital, as the demographic can be difficult to match. African Americans who do not have the sickle cell trait or disease are especially encouraged to donate, as their blood has a greater chance to have needed antigens and be a better match.
For a personal perspective, I spoke with Demeatrice Nance, whose daughter Makenzie, now 16, has sickle cell disease. Both Demeatrice and Makenzie are effective advocates in educating people about sickle cell, the need for blood donations, perseverance and helping others.
Makenzie has given a number of talks, especially to fellow young people, on sickle cell and the need to donate blood. Demeatrice, a Certified Community Healthcare Worker for the Ohio Sickle Cell and Health Association, has performed vital roles in a number of efforts, including the largest African American blood drive in Ohio.
Their outlooks are inspiring. While they have faced sickle cell disease—and its personal and emotional challenges—for 16 years, they focus on being positive and doing what is needed. This remains true even during the current pandemic. Demeatrice said there is a greater need for blood, but many are currently afraid to give, so she and her daughter are continuing to educate and help.
An avid football fan, Makenzie adapts a coach’s saying that, when you get hit, keep your legs moving as you can still gain yardage. Makenzie says we can learn from that, whether donating blood, facing sickle cell, cancer, COVID-19 or other hardships. Even with the hits we are experiencing, we need to keep going, as we’ll help ourselves and others gain a bit more. So please, consider donating blood.
For another powerful perspective on sickle cell disease, please read Glinda Dames Fincher’s story here.
More information on joining the fight is available here.
Information on donating blood and Coronavirus is available here.
Edited by Glenda Bogar, American Red Cross volunteer