Sickle Cell disease and the importance of diverse donors

By Eilene E. Guy, American Red Cross volunteer

“Sickle Cell disease is the most common inherited blood disorder in the United States,” and Colleen Meadows is bound and determined to make that fact common knowledge.

Colleen Meadows, Emerging Markets Manager

Colleen has made it her full-time mission as emerging markets manager for the American Red Cross in Ohio.

But it’s not just knowledge she wants to spread. She wants action! “I want to increase awareness of sickle cell disease to get more Ohioans – especially those of African American descent – to step up and donate blood.”

More than 100,000 people in America – primarily those of African American descent – live with sickle cell disease. The disorder causes red blood cells to curve into a “C” or sickle shape, which in turn makes the cells more likely to clump and weakens their ability to carry oxygen.

Regular blood transfusions help prevent strokes and treat anemia, periodic episodes of excruciating pain called “sickle cell crises” and life-threatening damage to internal organs. Blood from donors of the same racial and ethnic heritage contains antigens that help counteract patients’ pain and injury.

“Sickle cell is an internal condition. You can’t see it,” Colleen told me. “Everything they (patients) go through is dire.”

Colleen is well aware of the legacy of mistreatment African Americans have experienced at the hands of the healthcare establishment, so she stresses the fact that their blood is uniquely suited to fellow African Americans. The problem is that while one in three African American blood donors is a match for sickle cell patients, they make up less than 3% of the total number of donors. 

“The Red Cross is committed to increasing and widening the donor base in order to meet the needs of the whole diverse population of this country,” she says.

Colleen’s focus isn’t limited to African Americans. She’s also working to connect with Latino and LGBTQ+ populations which haven’t historically been welcomed into the ranks of blood donors. She’s recruiting trusted community leaders to spearhead awareness and donation events, and she’s teaching prospective donors how to prepare for a successful donation experience.

Colleen began her “career in blood” almost two decades ago when she became a Red Cross phlebotomist. For years she was dedicated to making every donor’s “jab” as comfortable as possible, to encourage repeat donations.

But for the past year she’s shifted to outreach to boost and broaden those donor numbers. And she’s encouraged by the response. “In one year, we’ve seen a lot of changes. The numbers (of donors) have gone up significantly and we’ve had a lot more first-time drives,” she says.

Colleen encourages everyone who can to make a blood donation, especially now, when severe winter weather and seasonal illness has led to a nationwide blood shortage. Schedule your donation by visiting RedCrossBlood.org, using the Blood Donor App, or calling 1-800-RED-CROSS.

Plea for blood donors who are Black to give during Black History Month

Donors essential for helping patients with sickle cell disease

By Sabrina Spikes, American Red Cross Blood Donor Recruitment Manager

Sickle Cell disease is the most common genetic blood disease in the U.S., affecting about 100,000 people—primarily affecting Black and African American individuals. Though there is no widely available cure, the Red Cross supports one of the most critical sickle treatments of all—blood transfusions. For many patients, a close blood type match is essential and is found in donors of the same race or similar ethnicity.

Blood donor Bridget C. Miller Harper at the 2021 Cleveland Browns blood drive

Blood transfusions from individuals of the same race or similar ethnicity and blood type are the most effective way to help patients experiencing a sickle cell crisis. Since the majority of people with sickle cell are of African descent, blood donations from Black individuals are essential in helping those suffering from this disease.

When provided blood from a donor of similar race or ethnicity, patients have fewer chances of complications. In the donor recruitment department here at Red Cross, we encourage individuals in the Black community to host blood drives and give blood. By collaborating with our community partners, we also provide and encourage blood donation education to increase the likelihood of a successful blood donation.

Blood donor Keith Lofton of Olmsted Falls donated in Rocky River in 2022

While working with community organizations, I have talked to many persons with sickle cell disease. They report experiencing anemia (a shortage of red blood cells), fatigue and severe pain crises. Often the only treatment available to alleviate this pain is blood transfusion. Some individuals with sickle cell disease can require up to 100 pints of blood per year. This makes minority blood donation critical.

Donating blood can make a difference in the lives of patients battling sickle cell disease, but also cancer, and other chronic illnesses. When we increase the number of blood donors who are Black, we diversify the blood supply – a critical step to improving health and wellness in the community. Together, we can raise awareness of the impact and need by hosting a blood drive or visiting redcrossblood.org to sign up to donate at a blood drive in your community.

Posted by Ryan Lang, American Red Cross board member and volunteer